UBU & Hereditary Angioedema
Unusual Babe Undercover is passionate about helping others. One way we want to help make a difference is by bringing awareness to a very rare and painful disease Hereditary Angioedema.
I didn’t find out I had Hereditary Angioedema until very late in life. All my life I was telling my Mother that something was wrong with me when I was taken to the doctor. Instead of getting better with the medications, I was getting worst. This is because I have Hereditary Angioedema, but the doctors kept miss diagnosing me and prescribing me medications that I was allergic to. As I got older, things became worse. There were doctors who kicked me out of there office because they said there was nothing wrong with me and it was all in my head. When I would start swelling or had an allergic reaction to something, the only thing that saved me was to drink lots of water.
A few years ago, I had a very bad allergic reaction to a new medication. This time a took pictures of my lips and face. My doctor was not available, so, I saw the doctor on call. He immediately looked at me and saw how swollen my lips and face were and said you have Hereditary Angioedema. Of course, I made a joke about it, but as he explained, IT IS NO JOKE. He asked me my age and I told him my age. He asked how you are still alive not knowing that you have this disease? It turns outs that I’m allergic to all medications, most foods that are not natural or organic, synthetics and much more. As I explained, water is the key in keeping me alive.
I want to make sure that no one ever has to experience what I have experienced my entire life with Hereditary Angioedema. Unusual Babe Undercover is on a mission to bring awareness to this painful disease by using our fashion to help raise money for the research for Hereditary Angioedema.
In the meantime, to learn more about Hereditary Angioedema, please visit the following websites:
www.webmd.com/skin-problems-and-treatments/hereditary-angioedema#1
https://en.wikipedia.org/wiki/Hereditary_angioedema
https://rarediseases.info.nih.gov/diseases/5979/hereditary-angioedema
